Abstract Search

ea0073aep116 | Calcium and Bone | ECE2021

European Registries for Rare Endocrine Conditions (EuRRECa): The use of an e-reporting tool for registering calcium and phosphate conditions

Ana Luisa Priego Zurita , Bryce Jillian , Ali Salma Rashid , Diana-Alexandra Ertl , Grasemann Corinna , Haeusler Gabriele , Rejnmark Lars , Ahmed Faisal , Natasha-Appelman Dijkstra , Agnès Linglart

IntroductionThe European Registries for Rare Endocrine Conditions (EuRRECa) project was launched in February 2018 and aims to support the needs of the endocrine and bone community by facilitating the collaboration between patients, health care professionals and researchers across Europe and beyond. It is closely linked to the European Reference Networks on Rare Endocrine Conditions (Endo-ERN) and Rare Bone Diseases (ERN BOND) with its registry EuRR-Bone....

0 shares

ea0081oc12.1 | Oral Communications 12: Reproductive and Developmental Endocrinology | ECE2022

The European Registries for Rare Endocrine Conditions (EuRRECa): the use of a core registry for collecting common data elements and clinician and patient reported outcomes

Priego Zurita Ana Luisa , Ali Salma Rashid , Bryce Jillian , Cools Martine , Danne Thomas , Dekkers Olaf M , Hiort Olaf , Katugampola Harshini , Linglart Agnes , Netchine Irene , Nordenstrom Anna , Patocs Attila , Pereira Alberto M , Persani Luca , Reisch Nicole , Smyth Arelene , Sumnik Zdenek , Taruscio Domenica , Visser Edward , Appelman-Dijkstra Natasha , Ahmed Faisal

Introduction: The European Registries for Rare Endocrine Conditions (EuRRECa) was created in collaboration with the European Reference Network on Rare Endocrine Conditions (Endo-ERN), the European Society for Paediatric Endocrinology and the European Society of Endocrinology to support the needs of the endocrine community.Aim: To describe the patient population and data entered in the EuRRECa Core Registry between June 2019 and December 2021.<p class...

0 shares

ea0073oc14.5 | Oral Communications 14: Across Endocrinology | ECE2021

The use of e-REC for capturing the occurrence of covid-19 infections in people with rare endocrine conditions

Bryce Jillian , Guisto Victoria di , Ali Salma Rashid , Alexandraki Kristi , Biermasz Nienke R , Brandi Maria Luisa , Castinetti Frederic , Druce Maralyn , Fugazzola Laura , Johannsson Gudmundur , Karavitaki Niki , Luger Anton , Marazuela Monica , Paschou Stavroula , Persani Luca , Puig-Domingo Manel , Reisch Nicole , Schalin-Jantti Camilla , Young Jacques , Appelman-Dijkstra Natasha M , Grozinsky-Glasberg Simona , Pereira Alberto M , Ahmed S. Faisal

IntroductionFollowing the onset of the COVID-19 pandemic in early spring 2020, there was a need to identify the burden of this infection on people with rare endocrine conditions. The European Registries For Rare Endocrine Conditions (EuRRECa) was launched in 2018 in collaboration with Endo-ERN, ESPE and ESE to support the needs of the wider endocrine community. The project consists of an e-reporting (e-REC) platform that allows monthly reporting of new c...

0 shares

Endocrine Abstracts

European Registries for Rare Endocrine Conditions (EuRRECa): The use of an e-reporting tool for registering calcium and phosphate conditions

The European Registries for Rare Endocrine Conditions (EuRRECa): the use of a core registry for collecting common data elements and clinician and patient reported outcomes

The use of e-REC for capturing the occurrence of covid-19 infections in people with rare endocrine conditions

BiosciAbstracts